Saturday, August 2, 2008

Edit (Update) Diagnosis

The second radiologist has said that when he examined the MRI results he saw no chiari malformation (brain herniation/cyst). In other words there is nothing wrong with my brain. However, after a day of testing they think they've found yet something else that may be at the root of this--back to a potentially serious diagnosis, but perhaps not. They tricked me once into getting worked up over a diagnosis and I'm going to try to stay calm this time around. If they find nothing with this other thing then I'm back to step one with no explanation for the symptoms, but at least I got a script for a half decent pain killer which does seem to work on many levels.

I am tired of this. This is rapidly becoming a medical soap opera at my extreme emotional expense.

I have some blood tests that still need to get done and I think I'm being passed off to another kind of specialist for more testing that I will elaborate on if anything serious comes of it.

The personal problems have not dissipated.

Your support and comments have been very meaningful to me. Really.

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Never having a physician spend more than ten minutes with me it was a surprise the neurologist spent an hour checking me out and asking questions.

Basically the MRI showed that the back of my brain is dropping out of the hole in the back of skull into the area where the spinal cord belongs. That's the short story and I don't remember all the fancy medical terms to label it properly. At least I know why the back of my head hurts. Also, I also have a cyst on my spinal cord and the theory now is that all of this is disruptive to spinal fluid. They want a different radiologist to spend a bunch of time looking at these specific problems since the first radiologist (paid $1500) was only requested to look for MS lesions and simply made a note that he found these other problems--he wasn't paid to examine them in detail, you see, and now someone else gets to do that.

They have an entire day of testing planned in the next few weeks which will include EKG, more blood tests to double check for Lupus, they want to check out my blood circulation because there is evidentally a problem with that also, and a bunch of other tests to rule in or out this, that, or the other. Sept 2 they'll go over all the tests results with me.

Meanwhile, and independently of the medical issues, I have personal issues that need to be attended to which are sapping any concentration I have left so I think I'll be taking a short break so I can take care of things that need to be taken care of.

I will have some awesome books to review for you when I come back.

Don't forget about me.

23 comments:

sumidiot said...

I'm looking forward to your book reviews. I hope the test and everything go as well as they can.

Drew said...

You're in my thoughts. You know where to find me, yes? I'll understand if you're not able to check in, but please don't be a stranger. The world is strange enough as it is. Errosthe!

Anonymous said...

I've never posted on your blog before, Myrtle, but we all want you well and healthy again. Please take as long of a break as you need to in order to attend to other matters, plus to fully recuperate from the gaunlet of tests you're facing.

We miss your intelligence and great humor on the boards!

- Michelle in MO

L said...

Wishing you good health. Take it easy, Myrtle, and we'll see you when you get back.

Laura K (NC) said...

You're brain is too big! You've got an overload of smarts.

I've got your blog on my bloglines account, and though I seldom leave a comment, you inspire me frequently to get a bigger brain.

I wish you well, and peace, in these recent trials of yours. My mom has gone through similar things.

Robert Talbert said...

I wish you good health as well. I hope that these issues get resolved soon and that you're back in the bloggers seat in no time.

J.D. Fisher said...

Now don't be saying stuff like "Don't forget me."

Anyway, ditto on laura k(nc)'s comment, and I join in the well wishing.

--Josh

Anonymous said...

My best wishes to you and your family in the coming weeks. I love your blog and thank you very much for the effort you put into the blog. I will check in to see if you post.

Louise

Melora said...

You have been in my thoughts and will continue to be. I hope that your upcoming tests go well. So is MS ruled out, anyway?

Anonymous said...

My best wishes are with you also for the strength that you will need to fight the good fight. And my hope is that you will be posting soon to this blog and to all of the others where your comments are so appreciated.

Hypatia

Anonymous said...

Myrtle,
I'll be thinking about you, sending lots of positive energy you way! Take all the time you need!
Holly in N NV

Sharon said...

Wishing you health and a speedy recovery, Myrtle! Please know that we'll be thinking about you, and look forward to seeing you back to blogging and on the boards.
-Sharon (sailmom)

Becky said...

Thinking of you, Myrtle, and sending all best wishes for good health and a good ending to the personal stuff.

And I don't care if you come back without the book reviews :). Just come back, soon, so we know everything is okay...

© 2003-2008 Mental multivitamin/M-mv said...

'couldn't possibly forget about you.

Sending you good thoughts for a return to health and a resolution of your personal concerns.

Best regards,

Melissa

Nora said...

You are sorely missed. Hoping for a complete recovery for you, and a speedy one. Or any kind, as long as you're better.

The Ridge School said...

We miss you lady! Sending you healing thoughts.

Jenny

Paula said...

You are in my thoughts and prayers. I pray you find the answers you seek. (HUGS)

Mamagistra said...

You are missed, friend Myrtle. Sending prayers and good wishes your way. May your peace and blessings be repeatedly added. ;D

Konkadoo said...

Please post an update as soon as you know a bit more. I'm sure this whole thing is very stressful so take care of yourself.

Anonymous said...

Thank you for posting the medical update. You have the right attitude--trying not to get too worked up about the diagnosis. The emotional see-saw would wear anyone out. We went through it last year with my dh. You are in my thoughts and prayers. Try not to worry too much about the homeschooling front. Believe me, your kids won't suffer.

- Michelle in MO

Jules said...

Wishes and prayers for you Myrtle. I miss you. (Caroline)

Kelli in TN said...

I have been missing you on WTM. I will be checking back here to see if you have an updates. You are in my thoughts and prayers for an accurate diagnosis, an effective course of treatment and resolution to the personal problems you mentioned.

HollyinNNV said...

I'm glad to see the update. I'm really glad that they found meds to give you pain relief! What an emotional rollercoaster you've been on. Thinking of you......Holly